Our miracle family story is not the typical story that is shared, but one I believe should be. Our daughter Amelia Irene Grady was born on January 4, 2016 and died on February 4 the same year. If you had asked me then to tell her story I would not have considered using the word miracle. As time has gone on, I have begun to realize the many wonderful things that at the time I did not fully appreciate. I am forever grateful for the compassionate care that we received during this time. Everyone did their best to help us cherish our time together during this journey:
- Before Amelia was born, OSF caregivers designed an elaborate plan for her delivery and immediate care afterwards
- We had plenty of ultrasound pictures as keepsakes.
- Through advanced surgical technology at OSF Children’s Hospital, a 3D model of Amelia’s heart was developed and given to us as a small reminder of her.
- One nurse arranged to have a photographer to capture special moments for our family, the first time we held Millie, -her baptism – and when she took her last breath.
- And her caregivers made sure we had hand and foot prints of Amelia and locks of her hair. In addition, they gave our boy’s angel bears to remind them of their sister.
The time immediately following Amelia’s death was difficult at best. I was in a very dark place and if it were not for the Pediatric Supportive Care and specifically Megan Mutti I don’t know that I would have made it back to the light. Not only does OSF have state-of-the-art facilities to care for children they also offer free counseling for family members that are experiencing illness and loss. The staff of OSF Children’s Hospital gave us a month to love and celebrate our daughter and then gave us the strength to carry on and begin to heal and a way to spread love and hope for others facing loss going forward. To read the full story of this families journey, click here.
The Pediatric Supportive Care program at OSF HealthCare Children’s Hospital of Illinois is designed to support families dealing with chronic and life-limiting illnesses. This program supports families through medical consultations for symptom management, counseling services and provides support to help families who have experienced a loss. If you are interested in making a contribution to this program, please click the button below: